Websites

Day Undefined is a website designed to help individuals, especially those with disabilities, find and learn about adaptive products that can make everyday life easier. Reviewers share honest opinions about items ranging from kitchen tools to home technology, and their feedback is based on real-world usage. “Advance accessible living through products that deliver value to the disability community, as decided by members of the disability community.”

Content- Good information and made by various people with disabilities.

Usability- Not overwhelming, easy to find information. No broken links that I found.

Organization- Has Home, About Us, Product Reviews, Blogs, and Contact.

Presentation- Very basic (like my website), click on main topics to get information

Rating (1-4)- I would say a 2, useful information, but you only need to visit a few times a year. Great for gifts!

The Memory and Aging Center at the University of California, San Francisco (UCSF) focuses on understanding, diagnosing, and treating memory disorders, dementia, and related conditions like Alzheimer's disease.

The Movement Disorders Clinic at the University of California, San Francisco (UCSF) specializes in diagnosing and treating conditions that affect movement, such as Parkinson's disease, tremors, forms of Ataxia, and Huntington's disease. 

Content- A lot to digest. I was looking at getting a referral from my Primary Care Physician (main general doctor) who is retiring in a few months. The facilities at UCSF are known as an Ataxia Center of Excellence (ACE), so I wanted to see them. Has all the information (and more) that I would expect to find.

Usability- The Memory and Aging Center website had more useful information, but it seemed the Movement Disorder Clinic website was what was applicable to me. Confusing on that part. 

Organization- With so much information it took awhile to go through it all. But, with dropdowns and appropriate tabs it was sorted well. As an “ACE” I was surprised I had to look specifically for Ataxia, but it was under Clinical Services > Speciality Services. 

Presentation- Very professional, and they took the time to make sure everything could be found. Almost too much information.

Rating (1-4)- I would say a 3. Good general information, but more so if you plan to go there (which I would expect from a clinic website). It does have links and documents to the National Ataxia Foundation (NAF), with information on clinical trials and research studies too.

Overall Rating- 4.5/5 The brochure does a great job of explaining accessibility options and preparing travelers with disabilities for a cruise. With a few small improvements to design and navigation, it would be nearly perfect.

I got diagnosed in about 10 minutes at the Mayo Clinic (Ataxia) after going to doctors and neurologists for three years. I went through the Mayo Clinic website for ataxia below.

Ataxia symptoms can result from various factors, including alcohol misuse, certain medications, stroke, tumor, cerebral palsy, brain degeneration, multiple sclerosis, or genetic disorders. Diagnosis typically involves a thorough medical history review, physical and neurological examinations, imaging studies like MRI or CT scans, and sometimes genetic testing. Treatment focuses on addressing the underlying cause when possible, managing symptoms, and providing supportive therapies such as physical therapy, occupational therapy, and speech therapy to improve quality of life.

Usability: 5
The website is user-friendly, with clear navigation menus and accessible language, making it easy for users to find and understand information about ataxia.

Organization: 5
Information is well-structured, with distinct sections and headings that guide readers through symptoms, causes, diagnosis, and treatment options in a logical sequence.

Presentation: 5
The site features a clean design with appropriate use of images and bullet points, enhancing readability and engagement for users seeking medical information.

Overall Rating: 5
This comprehensive and well-presented resource provides valuable information on ataxia, suitable for individuals seeking to understand the condition and its implications.

The San Mateo County Aging and Disability Resource Connection (ADRC) website provides resources for older adults and individuals with disabilities. While I haven’t used them yet, I was just made aware of their existence this week. You should see if there is an organization like this around you. They offer essential services for independent living like care planning, housing support, transportation assistance, referrals, short-term coordination, options counseling, and transition assistance. With a "no wrong door" approach, the ADRC collaborates with local organizations to streamline support services.

Usability: 5
Its usability is straightforward, with clear navigation and accessible information.

Organization: 5
Well-structured, but only has three sections for different services; “Community Resources”, “Become A Community Partner”, and “Contact Us”.

Presentation: 3
Presentation is clean and professional. 

Overall Rating: 2
I just filled out the “Contact Us” portion to get more information, so we will see. But, there just isn’t much to the website itself. You wont need to constantly go back for new information. But, that might be the point since older individuals aren’t great with technology.

The Center for Independent Living (CIL) thecil.org, provides resources, support, and advocacy for people with disabilities. Based in Berkeley, California, TheCIL was the first center of its kind and is part of a larger national movement to promote independence and equal opportunities for people with disabilities.

The website explains the history and mission of TheCIL, which was founded in the 1970s by disability rights pioneers. It offers information about programs that help individuals with skills for independent living, such as personal care, housing assistance, transportation training, and job readiness.

A large part of the site is dedicated to the services offered, including peer counseling, assistive technology training, youth services, and community advocacy. There is also a section for people seeking information on how to get involved, whether as volunteers, donors, or community partners.

Overall, the site is a strong informational tool for people seeking independence and empowerment through disability services.

Usability: 4/5
The site is simple to use and ADA-friendly, with clear navigation.

Organization: 4/5
Content is divided into easy-to-follow sections (services, history, get involved, etc.).

Presentation: 3.5/5
Professional and clean design, but could benefit from more images and videos.

Overall Rating: 4/5
An excellent resource for disability support and advocacy, especially for those in the Bay Area of California.

Ataxia Connection is a nonprofit organization dedicated to supporting individuals affected by ataxia. Their mission encompasses direct assistance, educational outreach, caregiver support, and funding for medical therapies, equipment, and research. The organization offers a range of resources, including information on living with ataxia, upcoming events like fundraising galas and golf challenges, and details about grants available to those impacted by the condition. Additionally, Ataxia Connection provides links to external resources for travel, exercise, speech therapy, assistive technology, and daily living aids, aiming to enhance the quality of life for ataxia patients and their caregivers. 

Usability: The website is easy to use. You can find what you need quickly without getting confused.
Rating: 4.5 out of 5

Organization: The pages are neatly organized with clear labels, so it's easy to find information about support, events, and resources. Everything is grouped in a way that makes sense.
Rating: 4.5 out of 5

Presentation: The design is simple but looks good. The colors, fonts, and pictures make it feel welcoming and easy to read.
Rating: 4 out of 5

Overall Rating: The site is friendly, helpful, and full of useful information for people with ataxia and their families. It’s a great place to learn and stay connected.
Rating: 4.5 out of 5

The Sanford Health Rare Disease Registry, known as CoRDS (Coordination of Rare Diseases at Sanford), is a free, international database that collects health information from individuals with rare diseases, those who are undiagnosed, and even at-risk individuals. The goal is to connect patients, researchers, and advocacy groups to advance research and improve understanding of over 10,000 rare diseases. Participants can enroll by completing an activation form and a questionnaire, which gathers basic health and demographic information. This data is securely stored and shared in a de-identified manner with approved researchers, ensuring privacy while facilitating scientific studies. Enrollees are also notified about relevant clinical trials and research opportunities. 

Usability: 4/5
The website is user-friendly, with clear instructions and easy navigation for enrollment. However, some sections could benefit from more detailed explanations.

Organization: 5/5
Information is well-structured, with distinct sections for participants, researchers, and advocacy groups, making it easy to find relevant content.

Presentation: 4/5
The site has a clean design with helpful visuals and links, though incorporating more interactive elements could enhance engagement.

Overall Rating: 4.5/5
The CoRDS registry is a valuable resource for the rare disease community, offering a secure and accessible platform for data sharing and research collaboration. Its comprehensive approach and commitment to privacy make it a trustworthy tool for patients and researchers alike. I would say visit every few months for updates.

The Disability Rights Education & Defense Fund (DREDF) is a civil rights organization founded in 1979. Run by people with disabilities and family members, it works to protect the rights of people with disabilities through legal advocacy, training, education, and public policy. Their goal is a just world where everyone lives free from discrimination. DREDF highlights many current issues, like Medicaid funding, healthcare access, housing, education, transportation, and defending Section 504 rights. 

Under Education Resources, they offer tools for families, including sample letters, IEP guides, and resources for parents of children with disabilities. In legal advocacy, they represent clients, file amicus briefs, and partner with law firms to expand disability rights protections.

They also host events and trainings, like upcoming webinars and leadership discussions on housing and ADA topics People can subscribe to newsletters, learn about volunteer or pro bono (for free)  lawyer opportunities, and donate to support DREDF’s work.

Overall, DREDF is a well‑organized hub for legal and educational tools in the fight for disability rights.

Usability 4/5

The site is simple to use. It has clear menus and helpful links, though it could improve by combining training and event pages.

Organization 5/5

Information is well grouped under headings like About, Legal Advocacy, and Resources. It’s easy to find what you need.

Presentation 4/5

The design is professional and clean, with good use of whitespace and visuals. However, it could benefit from larger fonts and more engaging imagery.

Overall 5/5

This site is a strong resource center for disability rights. It balances legal info, advocacy tools, and calls to action very effectively.

The ADA National Network offers free information, training, and guidance about the Americans with Disabilities Act (ADA). It’s funded by the U.S. government through NIDILRR and runs ten regional centers plus a national Knowledge Translation Center. The website is updated regularly and includes a toll-free hotline (1‑800‑949‑4232) and email help.

The site clearly explains what the ADA is—the main civil rights law for people with disabilities signed in 1990, with updates in 2008—covering areas like jobs, public services, transportation, and communication. You can find easy-to-read fact sheets, FAQs, web courses, webinars, and captioned videos. Resources include regional and topic-based filters (for schools, workplaces, tech, public spaces, emergencies) so it’s easy to find what fits your needs .

They offer both general advice and tailored help through professionals who answer questions about reasonable accommodations, digital access, and building design. The research branch also shares systematic reviews and organizes “State of the Science” conferences. This site is a one-stop place for anyone who wants practical, trusted guidance about ADA rights and requirements.

Usability: 4/5
The website is easy to use with clear menus, a search bar, and filters. It was simple to find what I needed, like FAQs or training.

Organization: 4/5
Pages are grouped by topic, audience, and region, so content feels well sorted. The layout helps users go right to what they need without confusion.

Presentation: 3/5
The design is clean but a bit plain, mostly text and few images. Adding charts, photos, or icons could make it more engaging.

Overall Rating: 4/5
This is a strong, trustworthy resource for ADA info and help. I give it four stars because the info is excellent, but visuals could be better.

The National Organization on Disability (NOD) is a nonprofit group that works to make workplaces fair and open for people with disabilities. Their website offers many professional services for businesses, like tools to assess inclusion, leadership advice, and ways to help companies include and support employees with disabilities.

Visitors can find several offerings, including the Disability Inclusion Blueprint, which provides a roadmap to be more inclusive from hiring to retention. They also offer Engagement Assessments to gather feedback on job accommodations and workplace culture. NOD runs special projects like the Employer Diversity & Disability Practice Council (EDPC) and gives updates about new policies, events, and webinars, such as the “Technology and the Disability Experience” event in New York.

The site provides resources like toolkits and data-rich reports, including insights like: “Employees whose executives share their disabilities have 34% higher self-ID rates,” and “80% of disabilities are non-visible,” which highlight their data-driven work. There’s also a virtual career fair for students, and support options for donors and members.

All in all, NOD.org showcases their mission to increase access, reduce barriers, and improve success for people with disabilities in the workplace. It’s aimed at company leaders, HR teams, and advocates looking for real tools and facts to make change happen.

Usability: 4/5
The website is easy to navigate, with a clear menu and helpful buttons. It’s simple to find what you need, though some parts feel packed with info.

Organization: 4/5
Information is grouped well into sections like Offerings, Projects, and Resources. It’s organized enough that visitors can quickly move between topics.

Presentation: 4/5
The design is clean, with eye-catching images and easy-to-read text. It looks professional and the visuals help make the message clear.

Overall Rating: 4/5
NOD.org is a strong and well-laid-out site that explains how it supports disability inclusion in work places. It’s clear, helpful, and looks great, though a bit busy in places.

The National Ataxia Foundation (ataxia.org) is a nonprofit site that helps people with ataxia, their families, doctors, and anyone who wants to learn more. The website shares basics like what ataxia is, what symptoms are, how it is diagnosed, and available treatments. It also has special pages for many types of ataxia — hereditary types like SCA (spinocerebellar ataxia), episodic ataxia, immune-mediated, and others.

There are many useful educational resources: fact sheets, webinars, videos (including “Ask the Ataxia Expert”), conferences, a blog, and news about research. You can also find support groups, patient stories, how to get genetic testing and join registries, and a listing of authorized ataxia specialists. The site encourages advocacy, asking people to share their stories, support Hill Day, and view legislative issues affecting ataxia research and treatment.

Overall, the site is generous with free, credible information and is deeply committed to helping people with ataxia live better lives. It supports both newcomers (newly diagnosed) and long-time patients.

Category

Usability

The site is easy to use: menus clearly labeled (“About Ataxia,” “Research,” “Advocacy,” etc.) help users find content fast. Some pages have so much content that it can feel overwhelming or takes time to scroll and locate what you need.

Organization

Information is grouped well: you can find sections by ataxia type, resources, support groups, research, etc., which keeps things clean. Occasionally you might hit a page that has outdated or less frequently updated content, which can be confusing.

Presentation

Very professional and caring: clean design, good fonts, helpful images and graphics, and clear calls to action (like signing up or becoming a member). Some pages are text-heavy and could benefit from more visuals or better layout for people with visual or cognitive challenges.

Overall Rating

Overall, this is a very strong site for information, connection, and advocacy in the ataxia community. It could reach a 5 if it improves in visual clarity, regular updates of all content, and increased accessibility (for example better support for screen readers or easier navigation for people with mobility issues). BUT this is a website I check almost daily.