Calendar of Zooms & Webinars (Constantly Updated)
Ataxia Comparison (SCA28 & the 3 most common types)
Ataxia Types (NOT a full list. Please let me know what to add with all the information)
Movement Disorders Chart (Ataxia & the main ones)
ADA Incident Form (Made on ChatGPT, so not "official" but I couldn't find any other one)
Title III (Public Accommodations) ADA Checklist (I created one because I couldn't fine one)
Disabled Discount Letter (to businesses)
Legislative (US Congress) "Scorecard" of Representatives on rare diseases
Set up beneficiaries
Disability Services and Financial Planning (ataxia.org)
Long-Term Disability Insurance
Loyalty programs, like Lyft, Delta SkyMiles, Alaska Mileage Plan, Hilton Honors, or BILT Rewards
Just Watch (find where to stream media)
Kanopy (Free with most library cards)
Hoopla (Free with most library cards)
More Than Capable Podcast
Capable: a Disable Comedy (short videos)
Rampin' Up Podcast
Two Disabled Dudes Podcast
Ataxia, Did You Know? Podcast
The Ataxian movie
The Ride Ahead movie
The Cake Eaters movie
Fiona Cauley (Comedian with Friedreich’s ataxia)
Discover & Go (Library Card)
DoTheBay (free ticket giveaways)
SUV for car rental (Because of height)
CalTrain RTC Card (San Francisco)
What is ADA? (Video)
"Show Your Badge & Save" (Vegas)
Disabilities Bill of Rights for Air Travel
STEP Program (Smart Traveler Enrollment Program)
Daily News (CNN 10, PBS NewsWrap)
Public Service Loan Forgiveness (PSLF)
Teacher Loan Forgiveness (TLF)
Fulgent Genetic Testing
Cinemark Movie Club
Do The Bay (Bay Area)
SF Fun Cheap (Bay Area)
BucketListers (Main Cities)
My classroom was set on fire
45 minute nap mid-day
Sit down and rest legs after an hour of standing
No or limit alcohol intake
Install grab bars or floor grips where you can
A walking stick if walking on uneven ground
Adult "Sippy Cup" for liquids
The Medical Equipment Loan Program (MELP), also known as FreeMedEquip.org
Ataxia Card (editable) from NAF
Get out of the house
Have a hobby (Accessible Festivals)
Get into a TV series
Learn a new skill
Read
Research the disease and do clinical studies (NAF, Rare Patient Voice, Clinical Trials, CoRDS)
Attend the national conference
Join support groups in-person and online
Be Social (Meetups)
Ataxia Center of Excellence (ACE)
National Society of Genetic Counselors
Restless Leg Syndrome (RLS)
Accessible Parking Placard (CA DMV)
Total and Permanent Disability Discharge (TPD)
CalSTRS Pension Disability Guide (just to give you idea if you job has something like it)
State Disability Insurance (SDI)-CA
Social Security Disability Insurance (SSDI)- USA
Supplemental Security Income (SSI)- USA
Section 504 of the Rehabilitation Act of 1973
Zen and the Art of Happiness by Chris Prentiss
Single. On Purpose by John Kim
Limitless by Jim Kwik
The 5 Love Languages by Gary Chapman
Nothing Wrong With Asking For A Little Help by Dave Lewis
Start With Why by Simon Sinek
Unfu*k Yourself by Gary John Bisop
A Family Disease by Dana Lorene Creighton
The Four Agreements by Don Miguel Ruiz
The Subtle Art of Not Giving a F*ck by Mark Manson
The Mountain Is You by Brianna Wiest
The Paradox of Choice by Barry Schwartz
Make Your Bed by Admiral William H. McRaven
One Step At A Time by Angela MacLauchlan
How To Change Your Mind by Michael Pollan
Meditations by Marcus Aurelius
White Fragility by Dr. Robin DiAngelo
The Compound Effect by Darren Hardy
Finding Level Ground by Deborah Levi
Limitless by Mallory Weggemann
The Homework Myth by Alfie Kohan
The Wisdom of Insecurity by Alan Watts
Living With Ataxia by Martha A. Nance, MD
Think Like a Monk by Jay Shetty
The One Thing by Gary Keller
How to Be an Antiracist by Dr. Ibram X. Kendi
The Seven Spiritual Laws of Success by Deepak Chopra
My Thirty-Five Years with Ataxia by Patricia Birdsong Hamilton
Who Moved My Cheese? by Spencer Johnson
You Are a Badass at Making Money by Jen Sincero
The New Jim Crow by Michelle Alexander
The Anti-Ableist Manifesto by Tiffany Yu
The Secret by Rhonda Byrne
Level Up by Rob Dial
Between The World And Me by Ta-Nehisi Coates
1984 by George Orwell
What is Ataxia? by Shawn Davis
The Essential 55 by Ron Clark
Guns, Germs and Steel by Jared Diamond
The Power of Now by Eckhart Tolle
Can't Hurt Me by David Goggins
Disability Rights And Wrongs by Tom Shakespeare
Think Straight by Darius Fox
Born A Crime by Trevor Noah
Demystifying Disability by Emily Ladau
The 4-Hour Work Week by Timothy Ferriss
The Pivot Year by Brianna Weist
Mom (and Dad), I Want to Hear Your Story by Jeffrey Mason
Othello by William Shakespeare
Ataxia Workbook by Dario Jeyco
As a Man Thinketh by James Allen
Langston Hughes by Jack Rummel
Find Your Why by Simon Sinek
Greenlights by Matthew McConaughey
A Disability History of the United States by Kim E. Nielsen
The Art of War by Sun Tzu
All The Way To The Top by Annette Bay Pimentel
The Algebra of Happiness by Scott Galloway
Break Up On Purpose by John Kim
Modern Romance by Aziz Ansari
Understanding Spinocerebellar Ataxia by Dr. Gideon Hyde
On the Shortness of Life by Seneca
Everything Is F*cked by Mark Manson
Bolivia by Lonely Planet
Ataxia: The Guide To Complete Knowledge About Ataxia, Treatments And Natural Remedies That Work by Dr. Daniel William
How to Stop Worrying and Start Living by Dale Carnegie
LifePass by Payal Kadakia
Stop Doing That Sht* by Gary John Bishop
Living with Spinocerebellar Ataxia (SCA) by ibrahim Oz
Vagabonding: An Uncommon Guide to the Art of Long-Term World Travel by Rolf Potts
The Manual (also called The Enchiridion) by Epictetus
Costa Rica Travel Guide 2026 by Sara Palma
Become What You Are by Alan Watts
Animal Farm by George Orwell
Thriving With Ataxia: A Handbook to Strength and Resilience by Rafael del Brino
Teaching With Poverty in Mind by Eric Jensen
The Power of Not Caring by Grace Scott
The 7 Habits of Highly Effective People by Stephen R. Covey
Stare at Me by Joey Mullaney
A Brief History of Everything by Ken Wilbur
The Midwest Survival Guide by Charlie Berens
CognAc Research Study Website
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Goes over the difficulty and length it takes to get disability benefits.
Content- *Some language NSFW (Not Safe For Work). A lot of information, but good to share with family and friends that don't realize all the steps involved.
Length/Duration- 24 minutes long
Organization- Jumps around a bit, but gets the point out.
Presentation- Originally shown on HBO in 2024, so uses limited profane language and adult themes. The topic is presented in a way adults can understand.
Rating (1-4)- I would say a 4, useful information, and not that long. It gives you baseline information that isn't overwhelming.
Goes over the fight for rights for Americans with disabilities in the 1970's with Section 504.
Content- Factual information told in the first person in a humorous way.
Length/Duration- 8 minutes long
Organization- Goes in chronological order.
Presentation- Originally shown on Comedy Central in 2018. It is only 8 minutes long, so not a long time investment to watch.
Rating (1-4)- I would say a 3, historically information presented in a humorous way that everyone can understand.
Chronicles the transformative story of Camp Jened, a summer camp for teens with disabilities in the 1970s, and its role in sparking a movement for disability rights and accessibility in the United States.
Content- Factual information told 2nd hand in a humorous way.
Length/Duration- 106 minutes long
Organization- The first part is about a summer camp that brought together disabled teens from all over the country. The second part is about how they were able to organize and get Section 504 enacted in the USA.
Presentation- Originally shown on Netflix in 2020 in a documentary format.
Rating (1-4)- I would say a 2 or 3, great to see the history of Section 504 but it isn’t NEEDED to watch. It does show the emotional aspect that many videos or articles overlook.
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